Small steps

On the 20th of January we received a phone call from Auckland to say treatment wont be starting the following week. Logan has trisomy 8 and trisomy 15 which means he has extra copies of those two chromosomes. One of those extra chromosomes didnt show up in the second bone marrow aspirate so now he has to have a third one in April to see what is happening. The specialist said we need to take small steps.
One good thing is, he can carry on hunting and fishing.

Logans favourite things to do

These are some of Logans favourite things to do. (Click on any photo to enlarge)

 Paua diving in Kaikoura.Caught, cooked and eaten all in one day doesn't get any better.

Logan with the catch of the day a 9.95kg albacore tuna caught at a secret spot off Napier.

 Scallop diving at Mercury Island, Coromandel. Logans very first open water scuba dive.

Pheasant shooting at Gwavas Forest with his mate Tess.

After a year of tests which include bone marrow aspirations, trephine biopsy and monthly bloods, we now have a treatment start date for his myelodysplasia. Logan being the only child with it in the country at present. Treatment involves chemotherapy and a stem cell transplant.

We have to be at Starship on the 26th of January for a clinic appointment and on the 27th he goes into theatre to have a hickman line inserted.This is where all the drugs will be adminstered and bloods taken during the course of the treatment which begins roughly the 31st of January.

The donor was supposed to be cord blood from Slovakia, but is now cord blood from America, the Haematologist feels this is the best option for Logan.

All the above activities will be put on hold untill after treatment and recovery.