The day started out with more vomit, so the food through his NG tube has been reduced. He has mucositis, which has given him ulcers and rawness in his mouth and throat. They think it is in his stomach also because of the pain he is getting. He's now been given a morphine pump to use himself, when the pain comes on press a button and he gets more.
This morning he was given another platelet transfusion.
The stem cells arrived in what looked like a compost bin, inside this was another container that had liquid nitrogen inside it that was frozen to -165deg. Inside that container was what looked like a tin box that had the stem cells in a bag on it. They were defrosted in warm water inside their bag.
He was given a bit more morphine and phenergan because sometimes you can have a reaction to the preservative they are in and can cause a bit of pain. Logan was fine throughout the whole thing, that lasted all of five minutes. The nurse just hung the bag on a hook and they went straight into his hickman line. The stem cells will find their own way to his bone marrow and they should start producing healthy cells in 10 days.
The smell you get when you open a can of corn is what the stem cells smelt like, it was quite strong,
and will hang around for a couple of days. You get used to the smell, but when you leave the room and come back in it is there.
The cells came from Milwaukee USA, and there was 30mls of them in the bag.
Day +1
The day started out not very good, Logans in quite a bit of pain so they have got background morphine going all the time, he is still able to give himself little top ups when he needs to.
His feed has been reduced even more. He's down to 20ml an hour but they have increased his IV fluids. He also has a fever off and on.
He has also been given another platelet transfusion and a blood transfusion. Platelets were given in the morning and the blood in the evening.
He spends a lot of time sleeping, and when he is awake he has no energy.
I still get the odd smile out of him though.
Hi Logan
ReplyDeleteWe are sad to hear that you are in pain and pleased you have the morphine pump so you can top up when you need to. Hope the mucositis goes away soon so you can feel better.
All the stuff the stem cells came in sounds interesting -165 deg is amazing, I am amazed too it was all over so quick and only 30mls!
Hope tomorrow is a better day for you
Love Darren, Deborah, Katie and Ayden
Holey heck 30mls of the 'good stuff' doesn't sound like a lot but as long as it works that is plenty.
ReplyDeleteKeep smiling Logan, you are awesome!
Hi there Jen and Logan,
ReplyDeleteYay...The stem cells have left the building (or compost bin) and are now in you Logan. Go forth and multiply (or do whatever your job is little stem cells!) I hope that means you won't smell of corn forever ...?!?
We think of you both all the time and love you and miss you! :) Stay out of trouble Logan...and as Rove says "Say hi to your mum for me". lol
Hi the Jamiesons
ReplyDeleteSarah has shared this blog with me which is great as I often wonder how Logan is getting on. The ulcers must be terrible - Evan did say that Phenegan is fantastic stuff and the only part of everything that he would like again - so get lots of that to dull the pain.
Everything sounds so familiar as Evan went through all the same, just horrible, but there is light at the end of the dark tunnel. As each day passes you're closer and closer to the end of that tunnel and everything will soon be a distant nightmare.
All the best!
Hi Logan and Jenni
ReplyDeleteYou are in our thoughts often and hope that the good moments start happening soon and dont stop.
Ollie wants to say Hi to Logan.
Hi Logan
ReplyDeleteI spoke with your Dad and he's told me about how things are going. I hope you are being kind to Mum and all the hospital people! Did you finish reading Flight from Ledron - cool ending aye? The boys are all back to school tomorrow - I'm thinking about you Logan - kia kaha.
Mr Doyle