It turns out the Hemorrhagic Cystitis Logan has is caused by the BK Virus. Apparently a lot of people have it but it nothing comes of it. Because Logan is immunosuppressed it has managed to cause him some bother. Logan calls it the burger king virus.
 They had been giving him a lot of fluids to flush his bladder, clear the blood clots and to try and stop the bleeding. This caused too many other problems, not to mention all the pain he was in. He was getting nowhere near enough sleep and was completely exhausted.
So they decided it was time to put a catheter in. He ended up having two. One taking fluids in, this one went through his stomach and into the bladder, and the one going out. He has 100ml and hour going through as a flush. Finally he was able to sleep.
The op went well, but he needed oxygen for the next 16 hours as his breathing wasnt the best. He also had one on one nursing care for the next 48hrs, until he was stable. I think a lot of this had to do with all the painkillers he was on. He was on IV morphine and ketamine.
When he went down to theatre he was like a happy drunk, he had so many painkillers in him. He was giving the anaethetist a bit of stick about her hat, he thought she looked like a kitchen worker. Logan is not usually like this with strangers as you would know.
She gave him a bit of stick back by asking him if the gas smelled like oranges or petrol.
 The next day when she came up to see how he was she said he had charmed all the ladies in theatre.
After a couple of days his fevers finally started to subside and his pain was a bit less.
Three times they have tried reducing the amount of flush going through but within the hour it was back to being red with clots and having to be put back up again. Today it was reduced again and finally it is staying clear.
Things are looking really good. His graft couldnt be better. The doctors are really pleased with how the transplant has gone and the way his cells are growing. They think he is a showoff with the numbers he has.
We found out tonight that he is coming out of isolation on sunday and going on the ward, this is a huge step. He is going down the teenagers end which is quite nice, they have a lounge just for them and he will finally get to talk to some other kids.
He is slowly getting taken off the IV painkillers. His NG feed is getting increased slowly which means he will be coming off the TPN soon. Within the week hopefully he will be able to have some of his drugs orally, the sooner this happens the sooner we can go to RMH. He hasnt eaten a meal in over 6 weeks and he's been nil by mouth for a while so it will take a while for his stomach to adjust to the NG feed again.
During all this he still managed to have a bit of fun. He managed to pull one over me which doesnt happen very often. A nurse had come in to do his obs, Logan was just sitting up in bed when he said all of a sudden "I'm going to vomit", Carol and I looked at each other, I ran for the vomit bowl and gave it to him, he put his face in it pressed his ipod, and out came a vomit noise. Then he looks up with a cheesy grin on his face.
Where Logan got his strength from during this I will never know, he has been amazing.
He has been given two bravery beads to put with his beads of courage, he truly deserves them.